Alagille Syndrome Alliance in Tualatin, Oregon (OR)

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Alagille Syndrome Alliance
Employer Identification Number (EIN)931243619
Name of OrganizationAlagille Syndrome Alliance
In Care of NameCindy L Hahn
Address10500 Sw Starr Dr, Tualatin, OR 97062-8411
ActivitiesDescribed in section 509(a)(2) of the Code, Referral service (social agencies)
SubsectionCharitable Organization
Ruling Date10/1998
DeductibilityContributions are deductible
FoundationOrganization which receives a substantial part of its support from a governmental unit or the general public
OrganizationCorporation
Exempt Organization StatusUnconditional Exemption
Tax Period12/2013
Assets$100,000 to $499,999
Income$25,000 to $99,999
Filing Requirement990 (all other) or 990EZ return
Asset Amount$253,212
Amount of Income$72,638
Form 990 Revenue Amount$72,638
National Taxonomy of Exempt Entities (NTEE)Medical Research: Eye Research


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Amount of income in 2013: $72,638 (it was $69,992 in 2012)
Alagille Syndrome Alliance: 

 $72,638
Other organizations performing similar types of work: 

 $105,374

Assets in 2013: $253,212 (it was $260,171 in 2012)
Alagille Syndrome Alliance: 

 $253,212
Other organizations performing similar types of work: 

 $100,080

Expenses in 2013: $79,956
Alagille Syndrome Alliance: 

 $79,956
Other organizations performing similar types of work: 

 $65,058

Income to expenses ratio in 2013: 0.9
Alagille Syndrome Alliance: 

 0.9
Other organizations performing similar types of work: 

 1.0

Grants share in income in 2013: 99.9%
This organization: 

 99.9%
Other organizations performing similar types of work: 

 91.4%

Financial snapshot ($)

Revenue for 2013

Support schedule

Revenue, Expenses, and Changes in Net Assets or Fund Balances
201120122013
Total revenue$132,358$69,992$72,638
Contributions, gifts, grants, and similar amounts received$124,138$69,811$72,594
Program service revenue including government fees and contracts$8,151$0$0
Membership dues and assessments$0$0$0
Investment income$69$181$44
Gain/Loss from sale of assets other than inventory$0$0$0
Net income/loss from gaming and fundraising events$0$0$0
Gross profit/loss from sales of inventory$0$0$0
Other revenue$0$0$0
Total expenses$72,278$30,873$79,956
Total net assets$219,569$259,958$252,640
Excess/Deficit for the year$60,080$39,119$-7,318
Net assets or fund balances at beginning of year$159,489$220,839$259,958
Other changes in net assets or fund balances$0$0$0
Net assets or fund balances at end of year$259,958$252,640
Balance Sheets
201120122013
Total assets$220,204$260,171$253,212
Total liabilities$635$213$572
Net assets or fund balances$219,569$259,958$252,640
Other Information
201120122013
Did the organization engage in any significant activity not previously reported to the IRS?NoNo
Were any significant changes made to the organizing or governing documents?NoNo
Did the organization have unrelated business gross income of $1,000 or more during the year from business activitiesNoNoNo
Has the organization filed a Form 990-T for the year?NoNo
Did the organization undergo a liquidation, dissolution, termination, or significant disposition of net assets during the year?NoNo
Amount of political expenditures, direct or indirect$0$0
Did the organization file Form 1120-POL for this year?NoNo
Did the organization borrow from, or make any loans to, any officer, director, trustee, or key employee or were any such loans made in a prior year and still outstanding at the end of the tax year covered by this return?NoNo
Total amount involved$0$0
Initiation fees and capital contributions$0$0$0
Gross receipts for public use of club facilities$0$0$0
Did the organization engage in any section 4958 excess benefit transaction during the year, or did it engage in an excess benefit transaction in a prior year that has not been reported on any of its prior Forms 990 or 990-EZ?NoNo
At any time during the tax year, was the organization a party to a prohibited tax shelter transaction?NoNo
Reason for Public Charity Status (for 2013)
The organization is not a private foundation because it is:An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi)
Number of organizations supported0
Sum of amounts of support$0
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (for 2009 - 2013)
2009 - 2013 Total
Public Support$324,450
Subtotal Support$403,512
Gifts, grants, contributions, and membership fees received$403,512
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf$0
The value of services or facilities furnished by a governmental unit to the organization without charge$0
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) that exceeds 2% of the total support$79,062
Total Support$404,252
Public Support$403,512
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources$740
Net income from unrelated business activities, whether or not the business is regularly carried on$0
Other income. Do not include gain or loss from the sale of capital assets$0
Gross receipts from related activities, etc.$0
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Organizations performing similar types of work
IdNameAddressStateEstablishedTotal Income
1Vision Research Ropard Foundation39650 Orchard Hill Pl Ste 200, Novi, MI 48375-5391MI2006-06$1,138,053
2Tear Film And Ocular Surface Society Inc120 Fulton St Apt 2c, Boston, MA 02109-1447MA2003-04$833,557
3Reorganized Cleveland Eye-Bank Inc6700 Euclid Avenue, Cleveland, OH 44103-3956OH2014-07$786,042
4Lowy Medical Research Institute Inc3366 N Torrey Pines Ct Ste 300, La Jolla, CA 92037-1025CA2015-03$500,001
5Tarrant Eye Resources Inc1307 8th Ave Ste M2, Fort Worth, TX 76104-4137TX2007-05$407,682
6Pediatric Vision Research And Diagnostic Center321 South Henderson Street, Fort Worth, TX 76104TX2011-01$250,407
7Sarasota Retina Institute Research Foundation Inc3400 Bee Ridge Rd Ste 200, Sarasota, FL 34239-7243FL1996-02$212,501
8The Bernadotte Foundation For Childrens Eyecare IncOne Battery Park Plaza 7th Fl, New York, NY 10004-1405NY1994-01$194,474
9Strabismus Research Foundation37 Avon Ave, Mill Valley, CA 94941-1360CA2014-07$157,026
10Foundation For Osteopathic Research And Continuous Education Ltd3500 Depauw Blvd Ste 1100, Indianapolis, IN 46268-1136IN2013-04$129,399
11Project Vision Hawaii2938 Pacific Heights Road, Honolulu, HI 96813HI2011-02$126,770
12Wright Foundation For Pediatric Ophthalmology And Strabismus520 S San Vicente Blvd, Los Angeles, CA 90048-4616CA2002-07$125,701
13The Glaucoma Education & Research Fund Inc205 E 64th St Ste 101, New York, NY 10065-6673NY2009-03$117,607
14Alagille Syndrome Alliance10500 Sw Starr Dr, Tualatin, OR 97062-8411OR1998-10$72,638
15Gemstone Foundation34301 The Farm Road, Wildomar, CA 92595CA2003-07$55,659
16Eye Care For Kids Inc555 South 18th Street Suite 4c, Columbus, OH 43205OH2012-01$30,824
17The Port St Lucie Downtown Lions Foundation IncPO BOX 9301, Port St Lucie, FL 34985-9301FL2014-11$19,207
18Retina Care Research Institute Of Florida Inc3399 Pga Blvd Ste 350, Palm Bch Gdns, FL 33410-2831FL2010-09$6,000
19Hallandale Beach Eye Foundation Corp5641 Simms St, Hollywood, FL 33021-2736FL2010-03$1,700
20Amigovision FoundationPo 3396, Applegate, OR 97530OR2011-04$0
Number of organizations performing similar types of work
Alaska1
California15
Colorado1
Florida14
Georgia1
Hawaii2
Iowa1
Illinois2
Indiana2
Kentucky3
Massachusetts2
Maryland1
Michigan4
Minnesota1
Missouri1
North Carolina1
New Jersey2
New York13
Ohio7
Oregon2
Pennsylvania3
Tennessee1
Texas6
Virginia2
Washington3
Wisconsin3
West Virginia1
Total95

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