International Rett Syndrome Foundation, Dba Rett Syndrome Foundation Intl in West Chester, Ohio (OH)

International Rett Syndrome Foundation, Dba Rett Syndrome Foundation Intl
Employer Identification Number (EIN)	311682518
Name of Organization	International Rett Syndrome Foundation
Secondary Name	Dba Rett Syndrome Foundation Intl
Address	4600 Devitt Dr, West Chester, OH 45246-1104
Subsection	Charitable Organization, Educational Organization
Ruling Date	03/2000
Deductibility	Contributions are deductible
Foundation	Organization which receives a substantial part of its support from a governmental unit or the general public
Organization	Corporation
Exempt Organization Status	Unconditional Exemption
Tax Period	12/2013
Assets	$5,000,000 to $9,999,999
Income	$5,000,000 to $9,999,999
Filing Requirement	990 (all other) or 990EZ return
Asset Amount	$5,595,449
Amount of Income	$5,125,369
Form 990 Revenue Amount	$4,448,800
National Taxonomy of Exempt Entities (NTEE)	Medical Research: Fund Raising and/or Fund Distribution

Non-representatives - add comments:

Amount of income in 2013: $5,125,369 (it was $6,352,051 in 2012)

This organization:	$5,125,369
Other organizations performing similar types of work:	$41,105

Assets in 2013: $5,595,449 (it was $5,770,975 in 2012)

This organization:	$5,595,449
Other organizations performing similar types of work:	$30,004

Expenses in 2013: $3,949,496

This organization:	$3,949,496
Other organizations performing similar types of work:	$26,054

Income to expenses ratio in 2013: 1.3

This organization:	1.3
Other organizations performing similar types of work:	1.1

Employees paid over $100,000 in 2013: 20.0%

This organization:	20.0%
Other organizations performing similar types of work:	0.0%

Grants share in income in 2013: 99.0%

International Rett Syndrome Foundation, Dba Rett Syndrome Foundation Intl:	99.0%
Other organizations performing similar types of work:	29.5%

Financial snapshot ($)

Revenue for 2013

Assets at the end of 2013

Functional expenses for 2013

Support schedule

	2012	2013
Checklist
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)?	Yes	Yes
Is the organization required to complete Schedule B, Schedule of Contributors?	Yes	Yes
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office?	No	No
Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year?	No	No
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19?	No	No
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts?	No	No
Did the organization receive or hold a conservation easement, including easements to preserve open space, the environment, historic land areas, or historic structures?	No	No
Did the organization maintain collections of works of art, historical treasures, or other similar assets?	No	No
Did the organization report an amount for escrow or custodial account liability; serve as a custodian or provide credit counseling, debt management, credit repair, or debt negotiation services?	No	No
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments?	Yes	Yes
Did the organization report an amount for land, buildings, and equipment?	Yes	Yes
Did the organization report an amount for investments-other securities that is 5% or more of its total assets?	Yes	No
Did the organization report an amount for investments-program related that is 5% or more of its total assets?	No	No
Did the organization report an amount for other assets that is 5% or more of its total assets?	No	No
Did the organization report an amount for other liabilities?	No	No
Did the organization's separate or consolidated financial statements for the tax year include a footnote that addresses the organization's liability for uncertain tax positions under FIN 48 (ASC 740)?	No	No
Did the organization obtain separate, independent audited financial statements for the tax year?	No	No
Was the organization included in consolidated, independent audited financial statements for the tax year?	No	No
Is the organization a school described in section 170(b)(1)(A)(ii)?	No	No
Did the organization maintain an office, employees, or agents outside of the United States?	No	No
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more?	No	Yes
Did the organization report more than $5,000 of grants or other assistance to or for any foreign organization?	Yes	Yes
Did the organization report more than $5,000 of aggregate grants or other assistance to or for foreign individuals?	No	No
Did the organization report a total of more than $15,000 of expenses for professional fundraising services?	No	No
Did the organization report more than $15,000 total of fundraising event gross income and contributions?	Yes	Yes
Did the organization report more than $15,000 of gross income from gaming activities?	No	No
Did the organization operate one or more hospital facilities?	No	No
Did the organization attach a copy of its audited financial statements?	No	No
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government?	Yes	Yes
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals?	No	No
Did the organization answer 'Yes' about compensation of the organization's current and former officers, directors, trustees, key employees, and highest compensated employees?	Yes	Yes
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002?	No	No
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?	No	No
Did the organization maintain an escrow account other than a refunding escrow at any time during the year to defease any tax-exempt bonds?	No	No
Did the organization act as an 'on behalf of' issuer for bonds outstanding at any time during the year?	No	No
Did the organization engage in an excess benefit transaction with a disqualified person during the year?	No	No
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization's prior Forms 990 or 990-EZ?	No	No
Did the organization report any amount for receivables from or payables to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons?	No	No
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons?	No	No
Was the organization a party to a business transaction with one of the following parties
A current or former officer, director, trustee, or key employee?	No	No
A family member of a current or former officer, director, trustee, or key employee?	No	No
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner?	No	No
Did the organization receive more than $25,000 in non-cash contributions?	Yes	Yes
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions?	No	No
Did the organization liquidate, terminate, or dissolve and cease operations?	No	No
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets?	No	No
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3?	No	No
Was the organization related to any tax-exempt or taxable entity?	No	No
Did the organization have a controlled entity within the meaning of section 512(b)(13)?	No	No
Did the organization make any transfers to an exempt non-charitable related organization?	No	No
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes?	No	No

	2011	2012	2013
Statements Regarding Other IRS Filings and Tax Compliance
The number reported in Box 3 of Form 1096		0	7
The number of Forms W-2G		0	0
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners?		Yes	Yes
The number of employees reported on Form W-3, Transmittal of Wage and Tax Statements, filed for the calendar year ending with or within the year covered by this return		10	10
Did the organization file all required federal employment tax returns?		Yes	Yes
Did the organization have unrelated business gross income of $1,000 or more during the year?	No	No	No
Has it filed a Form 990-T for this year?		No	No
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?		No	No
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?		No	No
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?		No	No
Did the organization file Form 8886-T?		No	No
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?		No	No
Did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?		No	No
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?		Yes	Yes
Did the organization notify the donor of the value of the goods or services provided?		Yes	Yes
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?		No	No
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?		No	No
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?		No	No
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?		No	No
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?		No	No
Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year?		No	No
Did the sponsoring organization make any taxable distributions under section 4966?		No	No
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?		No	No
Initiation fees and capital contributions	$0	$0	$0
Gross receipts for public use of club facilities	$0	$0	$0
Gross income from members or shareholders	$0	$0	$0
Gross income from other sources	$0	$0	$0
Is the organization filing Form 990 in lieu of Form 1041?		No	No
The amount of tax-exempt interest received or accrued during the year		$0	$0
Is the organization licensed to issue qualified health plans in more than one state?		No	No
The amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans		$0	$0
The amount of reserves on hand		$0	$0
Did the organization receive any payments for indoor tanning services during the tax year?		No	No
Has it filed a Form 720 to report these payments?		No	No

	2012	2013
Compensation of Officers, Directors, Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
Total reportable compensation from the organization	$415,214	$428,616
Total reportable compensation from related organizations	$0	$0
Total estimated amount of other compensation from the organization and related organizations	$5,158	$5,250
Total number of individuals who received more than $100,000 of reportable compensation from the organization	2	2
Total number of independent contractors who received more than $100,000 of compensation from the organization	0	0

	2011	2012	2013
Statement of Revenue
Total revenue	$4,292,490	$4,332,660	$4,448,800
Contributions, Gifts, Grants and Other Similar Amounts	$4,023,726	$4,387,084	$4,404,603
Program Service Revenue	$76,895	$175,680	$60,066
Educational Support Services		$175,680	$60,066
All other program service revenue		$0	$0
Other Revenue
Investment income (including dividends, interest, and other similar amounts)	$14,600	$67,949	$101,486
Income from investment of tax-exempt bond proceeds	$0	$0	$0
Royalties	$0	$0	$0
Net rental income	$0	$0	$0
Net gain/loss from sales of assets other than inventory	$-5,852	$47	$1,000
Gross amount from sales of assets other than inventory (Securities / Other)	$15,087 / $0	$1,297,600 / $0	$35,797 / $0
Less: cost or other basis and sales expenses (Securities / Other)	$15,059 / $5,880	$1,297,553 / $0	$34,797 / $0
Gain or (loss) (Securities / Other)	$28 / $-5,880	$47 / $0	$1,000 / $0
Net income/loss from fundraising events	$186,123	$-313,520	$-121,961
Gross income from fundraising events	$851,050	$389,282	$507,651
Less: direct expenses	$664,927	$702,802	$629,612
Net income/loss from gaming activities	$0	$0	$0
Net income/loss from sales of inventory	$-3,002	$15,420	$3,606
Gross sales of inventory, less returns and allowances	$36,024	$34,456	$15,766
Less: cost of goods sold	$39,026	$19,036	$12,160
Miscellaneous Revenue	$0	$0	$0

	2011	2012	2013
Statement of Functional Expenses
Total functional expenses	$4,254,291	$5,583,125	$3,949,496
Grants and other assistance to domestic organizations and domestic governments		$3,446,760	$1,936,518
Grants and other assistance to domestic individuals		$0	$0
Grants and other assistance to foreign organizations, foreign governments, and foreign individuals		$195,603	$245,445
Benefits paid to or for members		$0	$0
Compensation of current officers, directors, trustees, and key employees	$313,146	$420,371	$433,866
Compensation not included above, to disqualified persons		$0	$0
Other salaries and wages	$309,716	$350,620	$414,731
Pension plan accruals and contributions		$0	$0
Other employee benefits		$10,801	$13,031
Payroll taxes	$0	$26,156	$55,598
Fees for services (non-employees)
Management		$0	$0
Legal		$0	$0
Accounting		$34,504	$29,400
Lobbying		$0	$0
Professional fundraising services	$9,345	$0	$0
Investment management fees		$13,856	$21,701
Other		$211,411	$204,410
Advertising and promotion		$0	$0
Office expenses		$133,787	$161,297
Information technology		$124,160	$43,755
Royalties		$0	$0
Occupancy		$68,295	$65,742
Travel		$0	$0
Payments of travel or entertainment expenses for any federal, state, or local public officials		$155,498	$166,736
Conferences, conventions, and meetings		$328,301	$92,270
Interest		$0	$0
Payments to affiliates		$0	$0
Depreciation, depletion, and amortization		$7,267	$7,267
Insurance		$14,200	$17,372
Other expenses		$14,835	$21,132
Other expenses		$14,700	$9,161
Other expenses		$12,000	$7,000
Other expenses		$0	$1,564
Other expenses		$0	$1,500

	2011	2012	2013
Balance Sheet
Total assets	$5,811,683	$5,770,975	$5,595,449
Cash - non-interest-bearing		$255,380	$70
Savings and temporary cash investments		$3,508,062	$1,938,488
Pledges and grants receivable, net		$15,422	$752,463
Accounts receivable, net		$0	$0
Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees		$0	$0
Loans and other receivables from other disqualified persons, persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations		$0	$0
Notes and loans receivable, net		$0	$0
Inventories for sale or use		$11,383	$9,216
Prepaid expenses and deferred charges		$50,987	$62,944
Land, buildings, and equipment: cost or other basis		$27,251	$19,984
Investments - publicly traded securities		$0	$2,791,549
Investments - other securities		$1,883,022	$0
Investments - program-related		$0	$0
Intangible assets		$0	$0
Other assets		$19,468	$20,735
Total liabilities	$2,940,889	$4,161,334	$3,437,324
Accounts payable and accrued expenses		$62,411	$75,772
Grants payable		$4,098,923	$3,361,552
Deferred revenue		$0	$0
Tax-exempt bond liabilities	$0	$0	$0
Escrow or custodial account liability		$0	$0
Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified persons		$0	$0
Secured mortgages and notes payable to unrelated third parties	$0	$0	$0
Unsecured notes and loans payable to unrelated third parties	$0	$0	$0
Other liabilities (including federal income tax, payables to related third parties, and other liabilities)		$0	$0
Total net assets or fund balances	$2,870,794	$1,609,641	$2,158,125
Unrestricted net assets		$556,852	$351,409
Temporarily restricted net assets		$33,321	$785,981
Permanently restricted net assets		$1,019,468	$1,020,735
Capital stock or trust principal, or current funds		$0	$0
Paid-in or capital surplus, or land, building, or equipment fund		$0	$0
Retained earnings, endowment, accumulated income, or other funds	$0	$0	$0

Reason for Public Charity Status (for 2013)
The organization is not a private foundation because it is:	An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi)
Number of organizations supported	0
Sum of amounts of support	$0

	2009 - 2013 Total
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (for 2009 - 2013)
Public Support	$20,061,449
Subtotal Support	$20,742,562
Gifts, grants, contributions, and membership fees received	$20,742,562
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf	$0
The value of services or facilities furnished by a governmental unit to the organization without charge	$0
The portion of total contributions by each person (other than a governmental unit or publicly supported organization) that exceeds 2% of the total support	$681,113
Total Support	$20,944,354
Public Support	$20,742,562
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources	$201,792
Net income from unrelated business activities, whether or not the business is regularly carried on	$0
Other income. Do not include gain or loss from the sale of capital assets	$0
Gross receipts from related activities, etc.	$6,359,598

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Id	Name	Address	State	Established	Total Income
Organizations performing similar types of work
1	International Rett Syndrome Foundation, Dba Rett Syndrome Foundation Intl	4600 Devitt Dr, West Chester, OH 45246-1104	OH	2000-03	$5,125,369
2	Cure Tay-Sachs Foundation	12730 Triskett Rd, Cleveland, OH 44111-2529	OH	2007-08	$1,025,078
3	Rdh12 Fund For Sight	PO BOX 161481, Boiling Spgs, SC 29316-0025	SC	2012-03	$250,888
4	Go Mitch Go Inc	900 East Pecan Ste 300-294, Choctaw, OK 73020	OK	2010-08	$204,531
5	Race For Ellie Foundation	9359 Wayne Brown Dr, Powell, OH 43065-7743	OH	2011-11	$103,504
6	The Richard S Caliguiri Amyloidosis Research Fund Committee Inc	600 Grant St 44th Fl, Pittsburgh, PA 15219-2702	PA	1989-10	$94,326
7	Staytoughfighthard Inc	PO BOX 494, Manasquan, NJ 08736-0494	NJ	2006-04	$68,514
8	Sanfilippo Research Foundation Inc	225 Oakland St, Wellesley, MA 02481-6837	MA	2001-08	$68,126
9	Aphasia Network	PO BOX 13406, Portland, OR 97213-0406	OR	2013-11	$41,105
10	Ssadh Research Alliance Inc	2203 Pump Road, Henrico, VA 23233	VA	2010-03	$33,769
11	Ella Foard Foundation For Rett Syndrome	PO BOX 38, Concord, NC 28026-0038	NC	2009-12	$21,744
12	Masquerade Of Tampa Bay Inc	12033 Gandy Blvd N 135, St Petersburg, FL 33702	FL	2005-08	$21,116
13	Take Charge Cure Parkinsons Inc	8749 Belle Aire Dr, Boca Raton, FL 33433-1886	FL	2000-03	$12,916
14	Fight For Nicolas Inc	14941 Sw 26th Ter, Miami, FL 33185-5600	FL	2010-08	$7,842
15	365 Inspire A Cure	2625 Alcatraz Ave 265, Berkeley, CA 94705-2702	CA	2010-11	$0
16	Aids Research-Support Foundation	5000 Birch Street Suite 410, Newport Beach, CA 92660	CA	1994-07	$0
17	Alzheimers Global Initiative Inc	425 Tribble Gap Rd, Cumming, GA 30040-2441	GA	2013-04	$0
18	Autism Spectrum Disorders Tr, Gary F Stella Ttee	2016 N Knoxville Ave, Peoria, IL 61603-2415	IL	2011-01	$0
19	Awakening Angels	18605 Detroit Ave, Lakewood, OH 44107	OH	2013-11	$0
20	Bettys Foundation For The Elimination Of Alzheimers Disease	315 W 9th Suite 302, Los Angeles, CA 90015	CA	2009-06	$0

Number of organizations performing similar types of work

California	6
Colorado	1
Connecticut	1
Delaware	1
Florida	3
Georgia	1
Illinois	3
Indiana	2
Kansas	1
Louisiana	1
Massachusetts	4
Maryland	1
Michigan	1

Minnesota	1
North Carolina	3
New Jersey	2
New Mexico	1
New York	4
Ohio	4
Oklahoma	2
Oregon	2
Pennsylvania	8
South Carolina	1
Texas	4
Virginia	2
Washington	1

Total

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