Chiari & Syringomyelia Foundation in Staten Island, New York (NY)

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Chiari & Syringomyelia Foundation
Employer Identification Number (EIN)261316274
Name of OrganizationChiari & Syringomyelia Foundation
In Care of NameDorothy Poppe
Address29 Crest Loop, Staten Island, NY 10312-5632
SubsectionCharitable Organization, Educational Organization
Ruling Date05/2008
DeductibilityContributions are deductible
FoundationOrganization which receives a substantial part of its support from a governmental unit or the general public
OrganizationCorporation
Exempt Organization StatusUnconditional Exemption
Tax Period12/2014
Assets$500,000 to $999,999
Income$500,000 to $999,999
Filing Requirement990 (all other) or 990EZ return
Asset Amount$594,934
Amount of Income$506,778
Form 990 Revenue Amount$506,778
National Taxonomy of Exempt Entities (NTEE)Diseases, Disorders, Medical Disciplines: Neurology, Neuroscience


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Amount of income in 2014: $506,778 (it was $615,259 in 2013)
This organization: 

 $506,778
Other organizations performing similar types of work: 

 $146,878

Assets in 2014: $594,934 (it was $665,565 in 2013)
Chiari & Syringomyelia Foundation: 

 $594,934
Other organizations performing similar types of work: 

 $69,233

Expenses in 2013: $475,499
This organization: 

 $475,499
Other organizations performing similar types of work: 

 $114,753

Income to expenses ratio in 2013: 1.1
This organization: 

 1.1
Other organizations performing similar types of work: 

 1.1

Employees paid over $100,000 in 2013: 25.0%
This organization: 

 25.0%
Other organizations performing similar types of work: 

 0.0%

Grants share in income in 2013: 100.2%
This organization: 

 100.2%
Other organizations performing similar types of work: 

 70.9%

Financial snapshot ($)

Revenue for 2013

Assets at the end of 2013

Functional expenses for 2013

Support schedule

Checklist
20122013
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)?NoYes
Is the organization required to complete Schedule B, Schedule of Contributors?YesYes
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office?NoNo
Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year?NoNo
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19?NoNo
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts?NoYes
Did the organization receive or hold a conservation easement, including easements to preserve open space, the environment, historic land areas, or historic structures?NoNo
Did the organization maintain collections of works of art, historical treasures, or other similar assets?NoNo
Did the organization report an amount for escrow or custodial account liability; serve as a custodian or provide credit counseling, debt management, credit repair, or debt negotiation services?NoNo
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments?NoNo
Did the organization report an amount for land, buildings, and equipment?YesYes
Did the organization report an amount for investments-other securities that is 5% or more of its total assets?YesYes
Did the organization report an amount for investments-program related that is 5% or more of its total assets?NoNo
Did the organization report an amount for other assets that is 5% or more of its total assets?NoNo
Did the organization report an amount for other liabilities?NoNo
Did the organization's separate or consolidated financial statements for the tax year include a footnote that addresses the organization's liability for uncertain tax positions under FIN 48 (ASC 740)?NoNo
Did the organization obtain separate, independent audited financial statements for the tax year?YesYes
Was the organization included in consolidated, independent audited financial statements for the tax year?NoNo
Is the organization a school described in section 170(b)(1)(A)(ii)?NoNo
Did the organization maintain an office, employees, or agents outside of the United States?NoNo
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more?NoNo
Did the organization report more than $5,000 of grants or other assistance to or for any foreign organization?NoNo
Did the organization report more than $5,000 of aggregate grants or other assistance to or for foreign individuals?NoNo
Did the organization report a total of more than $15,000 of expenses for professional fundraising services?NoNo
Did the organization report more than $15,000 total of fundraising event gross income and contributions?YesYes
Did the organization report more than $15,000 of gross income from gaming activities?NoNo
Did the organization operate one or more hospital facilities?NoNo
Did the organization attach a copy of its audited financial statements?NoNo
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government?NoNo
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals?YesYes
Did the organization answer 'Yes' about compensation of the organization's current and former officers, directors, trustees, key employees, and highest compensated employees?NoNo
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002?NoNo
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?NoNo
Did the organization maintain an escrow account other than a refunding escrow at any time during the year to defease any tax-exempt bonds?NoNo
Did the organization act as an 'on behalf of' issuer for bonds outstanding at any time during the year?NoNo
Did the organization engage in an excess benefit transaction with a disqualified person during the year?NoNo
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization's prior Forms 990 or 990-EZ?NoNo
Did the organization report any amount for receivables from or payables to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons?NoNo
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons?NoNo
Was the organization a party to a business transaction with one of the following parties
A current or former officer, director, trustee, or key employee?NoNo
A family member of a current or former officer, director, trustee, or key employee?NoNo
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner?NoNo
Did the organization receive more than $25,000 in non-cash contributions?YesNo
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions?NoNo
Did the organization liquidate, terminate, or dissolve and cease operations?NoNo
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets?NoNo
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3?NoNo
Was the organization related to any tax-exempt or taxable entity?NoNo
Did the organization have a controlled entity within the meaning of section 512(b)(13)?NoNo
Did the organization make any transfers to an exempt non-charitable related organization?NoNo
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes?NoNo
Statements Regarding Other IRS Filings and Tax Compliance
201120122013
The number reported in Box 3 of Form 109600
The number of Forms W-2G00
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners?NoNo
The number of employees reported on Form W-3, Transmittal of Wage and Tax Statements, filed for the calendar year ending with or within the year covered by this return34
Did the organization file all required federal employment tax returns?YesYes
Did the organization have unrelated business gross income of $1,000 or more during the year?NoNoNo
Has it filed a Form 990-T for this year?NoNo
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?NoNo
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?NoNo
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?NoNo
Did the organization file Form 8886-T?NoNo
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?NoNo
Did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?NoNo
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?NoNo
Did the organization notify the donor of the value of the goods or services provided?NoNo
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?NoNo
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?NoNo
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?NoNo
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?NoNo
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?NoNo
Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year?NoNo
Did the sponsoring organization make any taxable distributions under section 4966?NoNo
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?NoNo
Initiation fees and capital contributions$0$0$0
Gross receipts for public use of club facilities $0$0$0
Gross income from members or shareholders$0$0$0
Gross income from other sources$0$0$0
Is the organization filing Form 990 in lieu of Form 1041?NoNo
The amount of tax-exempt interest received or accrued during the year$0$0
Is the organization licensed to issue qualified health plans in more than one state?NoNo
The amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans$0$0
The amount of reserves on hand$0$0
Did the organization receive any payments for indoor tanning services during the tax year?NoNo
Has it filed a Form 720 to report these payments?NoNo
Compensation of Officers, Directors, Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
20122013
Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
Total reportable compensation from the organization$103,230$106,000
Total reportable compensation from related organizations$0$0
Total estimated amount of other compensation from the organization and related organizations$0$0
Total number of individuals who received more than $100,000 of reportable compensation from the organization11
Total number of independent contractors who received more than $100,000 of compensation from the organization00
Statement of Revenue
201120122013
Total revenue$738,501$254,941$615,259
Contributions, Gifts, Grants and Other Similar Amounts$733,351$253,193$616,500
Program Service Revenue$0$0$0
Other Revenue
Investment income (including dividends, interest, and other similar amounts)$2,244$1,748$4,945
Income from investment of tax-exempt bond proceeds$0$0$0
Royalties$0$0$0
Net rental income$0$0$0
Net gain/loss from sales of assets other than inventory$0$0$0
Net income/loss from fundraising events$0$0$0
Net income/loss from gaming activities$0$0$0
Net income/loss from sales of inventory$0$0$0
Miscellaneous Revenue$2,906$0$-6,186
All other revenue$0$-6,186
Statement of Functional Expenses
201120122013
Total functional expenses$387,726$498,433$475,499
Grants and other assistance to domestic organizations and domestic governments$0$0
Grants and other assistance to domestic individuals$83,091$0
Grants and other assistance to foreign organizations, foreign governments, and foreign individuals$0$0
Benefits paid to or for members$0$0
Compensation of current officers, directors, trustees, and key employees$100,000$103,230$106,000
Compensation not included above, to disqualified persons$0$0
Other salaries and wages$63,955$77,123$96,757
Pension plan accruals and contributions$0$0
Other employee benefits$11,922$14,768
Payroll taxes$13,654$14,841$16,478
Fees for services (non-employees)
Management$254$0
Legal$0$0
Accounting$21,280$11,826
Lobbying$0$0
Professional fundraising services$0$0$0
Investment management fees$0$0
Other$0$0
Advertising and promotion$0$0
Office expenses$66,744$78,786
Information technology$0$0
Royalties$0$0
Occupancy$0$0
Travel$0$0
Payments of travel or entertainment expenses for any federal, state, or local public officials$0$0
Conferences, conventions, and meetings$38,132$21,293
Interest$0$0
Payments to affiliates$30$0
Depreciation, depletion, and amortization$2,354$1,857
Insurance$5,688$6,982
Other expenses$61,083$110,666
Other expenses$1,565$1,513
Other expenses$5,000$6,288
Other expenses$6,096$2,285
Balance Sheet
201120122013
Total assets$766,507$527,418$665,565
Cash - non-interest-bearing$246,062$237,097
Savings and temporary cash investments$259,225$359,428
Pledges and grants receivable, net$0$0
Accounts receivable, net$0$0
Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees$0$0
Loans and other receivables from other disqualified persons, persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations$0$0
Notes and loans receivable, net$0$0
Inventories for sale or use$0$0
Prepaid expenses and deferred charges$0$0
Land, buildings, and equipment: cost or other basis$4,631$2,774
Investments - publicly traded securities$0$0
Investments - other securities$17,500$65,054
Investments - program-related$0$0
Intangible assets$0$1,212
Other assets$0$0
Total liabilities$2,080$6,483$4,870
Accounts payable and accrued expenses$6,483$4,870
Grants payable$0$0
Deferred revenue$0$0
Tax-exempt bond liabilities$0$0$0
Escrow or custodial account liability$0$0
Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified persons$0$0
Secured mortgages and notes payable to unrelated third parties$0$0$0
Unsecured notes and loans payable to unrelated third parties$0$0$0
Other liabilities (including federal income tax, payables to related third parties, and other liabilities)$0$0
Total net assets or fund balances$764,427$520,935$660,695
Unrestricted net assets$269,594$409,354
Temporarily restricted net assets$0$0
Permanently restricted net assets$251,341$251,341
Capital stock or trust principal, or current funds$0$0
Paid-in or capital surplus, or land, building, or equipment fund$0$0
Retained earnings, endowment, accumulated income, or other funds$0$0$0
Reason for Public Charity Status (for 2013)
The organization is not a private foundation because it is:An organization that normally receives: (1) more than 33 1/3 % of its support from contributions, membership fees, and gross receipts from activities related to its exempt functions - subject to certain exceptions, and (2) no more than 33 1/3 % of its support from gross investment income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975
Number of organizations supported0
Sum of amounts of support$0
Support Schedule for Organizations Described in Section 509(a)(2) (for 2009 - 2013)
2009 - 2013 Total
Public support$2,730,124
Subtotal$2,730,124
Gifts, grants, contributions, and membership fees received$456,636
Gross receipts from admissions, merchandise sold or services performed, or facilities furnished in any activity that is related to the organization's tax-exempt purpose$0
Gross receipts from activities that are not an unrelated trade or business under section 513$2,273,488
Tax revenues levied for the organization's benefit and either paid to or expended on its behalf$0
The value of services or facilities furnished by a governmental unit to the organization without charge$0
Less$0
Amounts received from disqualified persons$0
Amounts received from other than disqualified persons that exceed the greater of $5,000 or 1% of the total support$0
Total support$2,740,434
Public support$2,730,124
Subtotal$10,310
Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources$10,310
Unrelated business taxable income (less section 511 taxes) from businesses acquired after June 30, 1975$0
Net income from unrelated business activities, whether or not the business is regularly carried on$0
Other income$0
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Organizations performing similar types of work
IdNameAddressStateEstablishedTotal Income
1International Society For Neurochemistry Inc15915 Ventura Blvd, Encino, CA 91436-2736CA2011-08$3,587,459
2Collaborative Spine Research Foundation6300 N River Road Suite 700, Rosemont, IL 60540IL2012-12$659,000
3Chiari & Syringomyelia Foundation29 Crest Loop, Staten Island, NY 10312-5632NY2008-05$506,778
4Neurology Research Foundation Inc3084 Bedford Ave, Brooklyn, NY 11210-3714NY1995-02$469,608
5Long Island Neurological Institute Inc1500-8b Rte 112 No 8a, Port Jefferson Station, NY 11776NY2006-05$355,001
6Austism Center Of North Mississippi146 S Thomas Street, Tupelo, MS 38801-5328MS2011-09$328,129
7Neuro Assistance Foundation2320 Bridgewood Dr, Keller, TX 76262-8820TX2008-08$271,237
8Kadlec Neurological Resource Center1268 Lee Blvd, Richland, WA 99352-4231WA1984-12$236,717
9Project Walk - Kansas City Inc6600 College Blvd Ste 315, Overland Park, KS 66211-1522KS2012-04$208,273
10Northwest Collaborative507 S Washington, Spokane, WA 99204WA2003-07$174,619
11Kurt Peter FoundationPO BOX 691, Menlo Park, CA 94026-0691CA2010-03$146,878
12International Symposium On Neural Regeneration Inc5728 Turkey Farm Road, Durham, NC 27705NC2010-09$130,824
13South Carolina Neurological AssnPO BOX 11188, Columbia, SC 29211-1188SC2008-09$60,000
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15Asian Congress Of Neurological Surgeons Inc24b Sycamore Ln, Manchester, CT 06040CT2014-06$34,935
16International Society For Frontotemporal Dementias Inc1124 Frederick Dr S, Indianapolis, IN 46260-3421IN2013-06$19,619
17Turning Point Foundation948 Cindy Circle Lane, Wellington, FL 33141FL2004-12$11,550
18International Neurotoxin Association30 Broad Street, New York, NY 10004-2304NY2011-11$197
19Interstate Sigfa Health Organization426 Shepherd Avenue, Brooklyn, NY 11208-2322NY2014-11$0
20Learning And The Brain Foundation Incorporated42-54 196th Street, Flushing, NY 11358NY2014-02$0
Number of organizations performing similar types of work
Alabama1
California11
Connecticut4
District of Columbia1
Delaware1
Florida4
Georgia1
Hawaii1
Idaho1
Illinois5
Indiana1
Kansas1
Kentucky1
Massachusetts1
Maryland1
Michigan3
Minnesota3
Missouri2
Mississippi1
Montana2
North Carolina5
Nebraska1
New Hampshire1
New Jersey5
New Mexico1
Nevada1
New York6
Ohio3
Oregon3
Pennsylvania1
South Carolina2
Texas5
Virginia3
Washington3
Wisconsin1
Total87

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