Cicatricial Alopecia Research Foundation in Geneva, Illinois (IL)
| Cicatricial Alopecia Research Foundation |
| Employer Identification Number (EIN) | 202049037 |
| Name of Organization | Cicatricial Alopecia Research Foundation |
| In Care of Name | Sheila Belkin |
| Address | 303 W State St, Geneva, IL 60134-2156 |
| Subsection | Charitable Organization |
| Ruling Date | 07/2005 |
| Deductibility | Contributions are deductible |
| Foundation | Organization that normally receives no more than one third of its support from gross investment income and unrelated business income and at the same time more than one third of its support from contributions, fees, and gross receipts related to exempt purposes |
| Organization | Corporation |
| Exempt Organization Status | Unconditional Exemption |
| Tax Period | 12/2013 |
| Assets | $100,000 to $499,999 |
| Income | $100,000 to $499,999 |
| Filing Requirement | 990 - Not required to file (all other) |
| Asset Amount | $157,341 |
| Amount of Income | $115,203 |
| Form 990 Revenue Amount | $103,957 |
| National Taxonomy of Exempt Entities (NTEE) | Medical Research: Specifically Named Diseases Research |
Amount of income in 2013: $115,203
| Cicatricial Alopecia Research Foundation: | $115,203 |
| Other organizations performing similar types of work: | $780,733 |
Assets in 2013: $157,341
| Cicatricial Alopecia Research Foundation: | $157,341 |
| Other organizations performing similar types of work: | $2,066,862 |
Expenses in 2013: $102,839
| Cicatricial Alopecia Research Foundation: | $102,839 |
| Other organizations performing similar types of work: | $553,787 |
Income to expenses ratio in 2013: 1.1
| This organization: | 1.1 |
| Other organizations performing similar types of work: | 1.1 |
Expenses allocated to program services in 2007: 41.8%
| Cicatricial Alopecia Research Foundation: | 41.8% |
| Other organizations performing similar types of work: | 90.2% |
Number of employees in 2007: 1
| Cicatricial Alopecia Research Foundation: | 1 |
| Other organizations performing similar types of work: | 6 |
Employees paid over $50,000 in 2007: 0.0%
| This organization: | 0.0% |
| Other organizations performing similar types of work: | 27.3% |
Grants share in income in 2013: 99.1%
| This organization: | 99.1% |
| Other organizations performing similar types of work: | 92.1% |
| Revenue, Expenses, and Changes in Net Assets or Fund Balances |
| 2011 | 2012 | 2013 |
|---|
| Total revenue | $75,018 | $98,548 | $103,957 |
| Contributions, gifts, grants, and similar amounts received | $74,035 | $72,134 | $103,025 |
| Program service revenue including government fees and contracts | $639 | $25,989 | $90 |
| Membership dues and assessments | $0 | $0 | $0 |
| Investment income | $0 | $0 | $72 |
| Gain/Loss from sale of assets other than inventory | $0 | $-1,603 | $770 |
| Gross amount from sale of assets other than inventory | $0 | $10,422 | $12,016 |
| Less: cost or other basis and sales expenses | $0 | $12,025 | $11,246 |
| Net income/loss from gaming and fundraising events | $0 | $1,898 | $0 |
| Gross profit/loss from sales of inventory | $0 | $0 | $0 |
| Other revenue | $344 | $130 | $0 |
| Total expenses | $131,187 | $128,085 | $102,839 |
| Total net assets | $171,915 | $142,378 | $149,896 |
| Excess/Deficit for the year | $-56,169 | $-29,537 | $1,118 |
| Net assets or fund balances at beginning of year | $228,084 | $171,915 | $142,378 |
| Other changes in net assets or fund balances | $0 | $0 | $6,400 |
| Net assets or fund balances at end of year | | $142,378 | $149,896 |
| Balance Sheets |
| 2011 | 2012 | 2013 |
|---|
| Total assets | $172,993 | $142,378 | $157,341 |
| Total liabilities | $1,078 | $0 | $7,445 |
| Net assets or fund balances | $171,915 | $142,378 | $149,896 |
| Reason for Public Charity Status (for 2013) |
| The organization is not a private foundation because it is: | An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in section 170(b)(1)(A)(vi) |
| Number of organizations supported | 0 |
| Sum of amounts of support | $0 |
| Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi) (for 2009 - 2013) |
| 2009 - 2013 Total |
|---|
| Public Support | $363,909 |
| Subtotal Support | $481,025 |
| Gifts, grants, contributions, and membership fees received | $481,025 |
| Tax revenues levied for the organization's benefit and either paid to or expended on its behalf | $0 |
| The value of services or facilities furnished by a governmental unit to the organization without charge | $0 |
| The portion of total contributions by each person (other than a governmental unit or publicly supported organization) that exceeds 2% of the total support | $117,116 |
| Total Support | $483,525 |
| Public Support | $481,025 |
| Gross income from interest, dividends, payments received on securities loans, rents, royalties and income from similar sources | $2,500 |
| Net income from unrelated business activities, whether or not the business is regularly carried on | $0 |
| Other income. Do not include gain or loss from the sale of capital assets | $0 |
| Gross receipts from related activities, etc. | $45,606 |
| Revenue, Expenses, and Changes in Net Assets or Fund Balances |
| 2005 | 2006 | 2007 |
|---|
| Total revenue | $25,573 | $27,758 | $123,954 |
| Contributions, gifts, grants, and similar amounts received | $18,550 | $25,202 | $113,273 |
| Contributions to donor advised funds | | $0 | $0 |
| Direct public support | $0 | $0 | $113,273 |
| Indirect public support | $0 | $0 | $0 |
| Government contributions (grants) | $0 | $0 | $0 |
| Program service revenue including government fees and contracts | $2,640 | $3,705 | $0 |
| Membership dues and assessments | $0 | $0 | $0 |
| Interest on savings and temporary cash investments | $0 | $0 | $1,021 |
| Dividends and interest from securities | $0 | $0 | $0 |
| Net rental income or (loss) | $0 | $0 | $0 |
| Gross rents | $0 | $0 | $0 |
| Less: rental expenses | $0 | $0 | $0 |
| Other investment income | $0 | $0 | $0 |
| Gain or (loss) from sales of assets other than inventory | $0 | $0 | $0 |
| Gross amount from sales of assets other than inventory | $0 | $0 | $0 |
| Less: cost or other basis and sales expenses | $0 | $0 | $0 |
| Net income or (loss) from special events and activities | $4,357 | $-1,262 | $9,660 |
| Gross revenue | $11,710 | $21,841 | $9,660 |
| Less: direct expenses other than fundraising expenses | $7,353 | $23,103 | $0 |
| Gross profit or (loss) from sales of inventory | $0 | $0 | $0 |
| Gross sales of inventory, less returns and allowances | $0 | $0 | $0 |
| Less: cost of goods sold | $0 | $0 | $0 |
| Other revenue | $0 | $0 | $0 |
| Total expenses | $6,989 | $22,325 | $42,553 |
| Program services | $0 | $0 | $17,768 |
| Management and general | $0 | $0 | $3,919 |
| Fundraising | $0 | $0 | $20,866 |
| Payments to affiliates | $0 | $0 | $0 |
| Net assets or fund balances at end of year | $16,084 | $21,517 | $102,918 |
| Excess or (deficit) for the year | $18,584 | $5,433 | $81,401 |
| Net assets or fund balances at beginning of year | $-2,500 | $16,084 | $21,517 |
| Other changes in net assets or fund balances | $0 | $0 | $0 |
| Statement of Functional Expenses (for 2007) |
| Total | Program services | Management and general | Fundraising |
|---|
| Total functional expenses | $42,553 | $17,768 | $3,919 | $20,866 |
| Grants paid from donor advised funds | | $0 | | |
| Other grants and allocations | | $0 | | |
| Specific assistance to individuals | | $0 | | |
| Benefits paid to or for members | | $0 | | |
| Compensation of current officers, directors, key employees, etc. | $16,333 | $8,750 | $2,450 | $5,133 |
| Compensation of former officers, directors, key employees, etc. | $0 | $0 | $0 | $0 |
| Compensation and other distributions, not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) | $0 | $0 | $0 | $0 |
| Salaries and wages of employees not included above | $0 | $0 | $0 | $0 |
| Pension plan contributions not included above | $0 | $0 | $0 | $0 |
| Employee benefits not included above | $0 | $0 | $0 | $0 |
| Payroll taxes | $1,495 | $717 | $224 | $554 |
| Professional fundraising fees | $0 | $0 | $0 | $0 |
| Accounting fees | $0 | $0 | $0 | $0 |
| Legal fees | $0 | $0 | $0 | $0 |
| Supplies | $164 | $119 | $30 | $15 |
| Telephone | $1,116 | $658 | $82 | $376 |
| Postage and shipping | $1,459 | $141 | $17 | $1,301 |
| Occupancy | $0 | $0 | $0 | $0 |
| Equipment rental and maintenance | $394 | $0 | $0 | $394 |
| Printing and publications | $5,288 | $1,253 | $0 | $4,035 |
| Travel | $2,340 | $2,115 | $0 | $225 |
| Conferences, conventions, and meetings | $345 | $345 | $0 | $0 |
| Interest | $0 | $0 | $0 | $0 |
| Depreciation, depletion, etc. | $975 | $836 | $84 | $55 |
| Other expenses not covered above | $12,644 | $2,834 | $1,032 | $8,778 |
| Balance Sheets |
| 2005 | 2006 | 2007 |
|---|
| Total assets | $16,084 | $22,035 | $104,481 |
| Cash - non-interest-bearing | $0 | $0 | $11,828 |
| Savings and temporary cash investments | $0 | $0 | $75,092 |
| Accounts receivable less allowance for doubtful accounts | $0 | $0 | $0 |
| Pledges receivable less allowance for doubtful accounts | $0 | $0 | $0 |
| Grants receivable | $0 | $0 | $0 |
| Receivables from current and former officers, directors, trustees, and key employees | $0 | $0 | $0 |
| Receivables from other disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B) | | $0 | $0 |
| Other notes and loans receivable less allowance for doubtful accounts | $0 | $0 | $0 |
| Inventories for sale or use | $0 | $0 | $0 |
| Prepaid expenses and deferred charges | $0 | $0 | $0 |
| Investments - publicly-traded securities | | $0 | $13,244 |
| Investments - other securities | $0 | $0 | $0 |
| Investments - land, buildings, and equipment less accumulated depreciation | $0 | $0 | $0 |
| Investments - other | $0 | $0 | $0 |
| Land, buildings, and equipment less accumulated depreciation | $0 | $0 | $4,317 |
| Other assets, including program-related investments | $0 | $0 | $0 |
| Total liabilities | $0 | $518 | $1,563 |
| Accounts payable and accrued expenses | $0 | $0 | $1,563 |
| Grants payable | $0 | $0 | $0 |
| Deferred revenue | $0 | $0 | $0 |
| Loans from officers, directors, trustees, and key employees | $0 | $0 | $0 |
| Tax-exempt bond liabilities | $0 | $0 | $0 |
| Mortgages and other notes payable | $0 | $0 | $0 |
| Other liabilities | $0 | $0 | $0 |
| Total liabilities and net assets/fund balances | $0 | $0 | $104,481 |
| Total net assets or fund balances | $16,084 | $21,517 | $102,918 |
| Reconciliation of Revenue per Audited Financial Statements With Revenue per Return |
| 2005 | 2006 | 2007 |
|---|
| Total revenue | $0 | $0 | $0 |
| Total revenue, gains, and other support per audited financial statements | $0 | $0 | $0 |
| Other expenses | $0 | $0 | $0 |
| Net unrealized gains on investments | $0 | $0 | $0 |
| Donated services and use of facilities | $0 | $0 | $0 |
| Recoveries of prior year grants | $0 | $0 | $0 |
| Other | $0 | $0 | $0 |
| Other revenue | $0 | $0 | $0 |
| Investment expenses | $0 | $0 | $0 |
| Other | $0 | $0 | $0 |
| Reconciliation of Expenses per Audited Financial Statements With Expenses per Return |
| 2005 | 2006 | 2007 |
|---|
| Total expenses | $0 | $0 | $0 |
| Total expenses and losses per audited financial statements | $0 | $0 | $0 |
| Other revenue | $0 | $0 | $0 |
| Donated services and use of facilities | $0 | $0 | $0 |
| Prior year adjustments | $0 | $0 | $0 |
| Losses | $0 | $0 | $0 |
| Other | $0 | $0 | $0 |
| Other expenses | $0 | $0 | $0 |
| Investment expenses | $0 | $0 | $0 |
| Other | $0 | $0 | $0 |
| Current Officers, Directors, Trustees, and Key Employees |
| Average hours per week devoted to position | Compensation | Contributions to employee benefit plans & deferred compensation plans | Expense account and other allowances |
|---|
| 40 | $16,333 | $0 | $0 |
| Total number of officers, directors, and trustees permitted to vote on organization business at board meetings | 9 |
| Are any officers, directors, trustees, or key employees listed in Form 990, Part V-A, or highest compensated employees listed in Schedule A, Part I, or highest compensated professional and other independent contractors listed in Schedule A, Part II-A or II-B, related to each other through family or business relationships? | No |
| Do any officers, directors, trustees, or key employees listed in Form 990, Part V-A, or highest compensated employees listed in Schedule A, Part I, or highest compensated professional and other independent contractors listed in Schedule A, Part II-A or II-B, receive compensation from any other organizations, whether tax exempt or taxable, that are related to the organization? | No |
| Does the organization have a written conflict of interest policy? | Yes |
| Other Information |
| Did the organization have unrelated business gross income of $1,000 or more during the year covered by this return, and has it filed a tax return on Form 990-T for this year? | No |
| Was there a liquidation, dissolution, termination, or substantial contraction during the year? | No |
| Is the organization related (other than by association with a statewide or nationwide organization) through common membership, governing bodies, trustees, officers, etc., to any other exempt or nonexempt organization? | No |
| Direct and indirect political expenditures | $0 |
| Did the organization file Form 1120-POL for this year? | No |
| Were substantially all dues nondeductible by members? | |
| Did the organization make only in-house lobbying expenditures of $2,000 or less? | |
| Dues, assessments, and similar amounts from members | $0 |
| Section 162(e) lobbying and political expenditures | $0 |
| Aggregate nondeductible amount of section 6033(e)(1)(A) dues notices | $0 |
| Taxable amount of lobbying and political expenditures | $0 |
| Does the organization elect to pay the section 6033(e) tax on the amount above? | |
| If section 6033(e)(1)(A) dues notices were sent, does the organization agree to add the amount above to its reasonable estimate of dues allocable to nondeductible lobbying and political expenditures for the following tax year? | |
| Initiation fees and capital contributions | $0 |
| Gross receipts for public use of club facilities | $0 |
| At any time during the year, did the organization, directly or indirectly, own a controlled entity within the meaning of section 512(b)(13)? | No |
| Amount of tax imposed on the organization during the year under: section 4911 | $0 |
| Amount of tax imposed on the organization during the year under: section 4912 | $0 |
| Amount of tax imposed on the organization during the year under: section 4955 | $0 |
| Did the organization engage in any section 4958 excess benefit transaction during the year or did it become aware of an excess benefit transaction from a prior year? | No |
| Amount of tax imposed on the organization managers or disqualified persons during the year under sections 4912, 4955, and 4958 | $0 |
| Amount of tax above, reimbursed by the organization | $0 |
| At any time during the tax year, was the organization a party to a prohibited tax shelter transaction? | No |
| Did the organization acquire a direct or indirect interest in any applicable insurance contract? | No |
| Did the supporting organization, or a fund maintained by a sponsoring organization, have excess business holdings at any time during the year? | No |
| Number of employees employed in the pay period that includes March 12, 2006 | 1 |
| Analysis of Income-Producing Activities (for 2007) |
| Unrelated business income | Excluded by section 512, 513, or 514 | Related or exempt function income |
|---|
| Business code | Amount | Exclusion code | Amount |
|---|
| Total | | $0 | | $10,681 | $0 |
| Program service revenue |
| Program service revenue 1 | 000000 | $0 | 00 | $0 | $0 |
| Program service revenue 2 | 000000 | $0 | 00 | $0 | $0 |
| Program service revenue 3 | 000000 | $0 | 00 | $0 | $0 |
| Program service revenue 4 | 000000 | $0 | 00 | $0 | $0 |
| Program service revenue 5 | 000000 | $0 | 00 | $0 | $0 |
| Medicare/Medicaid payments | 000000 | $0 | 00 | $0 | $0 |
| Fees and contracts from government agencies | 000000 | $0 | 00 | $0 | $0 |
| Membership dues and assessments | 000000 | $0 | 00 | $0 | $0 |
| Interest on savings and temporary cash investments | 000000 | $0 | Dividends, interest, payments with respect to securities loans, annuities, income from notional principal contracts, loan commitment fees, and other substantially similar income from ordinary and routine investments excluded by section 512(b)(1) | $1,021 | $0 |
| Dividends and interest from securities | 000000 | $0 | 00 | $0 | $0 |
| Net rental income or (loss) from real estate |
| debt-financed property | 000000 | $0 | 00 | $0 | $0 |
| not debt-financed property | 000000 | $0 | 00 | $0 | $0 |
| Net rental income or (loss) from personal property | 000000 | $0 | 00 | $0 | $0 |
| Other investment income | 000000 | $0 | 00 | $0 | $0 |
| Gain or (loss) from sales of assets other than inventory | 000000 | $0 | 00 | $0 | $0 |
| Net income or (loss) from special events | 000000 | $0 | Income from the sale of merchandise, substantially all of which (at least 85%) was donated to the organization (section 513(a)(3)) | $9,660 | $0 |
| Gross profit or (loss) from sales of inventory | 000000 | $0 | 00 | $0 | $0 |
| Other revenue | 000000 | $0 | 00 | $0 | $0 |
| Information Regarding Taxable Subsidiaries and Disregarded Entities (for 2007) |
| EIN of corporation, partnership, or disregarded entity | Percentage of ownership interest | Total income | End-of-year assets |
|---|
| 0% | $0 | $0 |
| 0% | $0 | $0 |
| 0% | $0 | $0 |
| 0% | $0 | $0 |
| Compensation of the Five Highest Paid Employees Other Than Officers, Directors, and Trustees (for 2007) |
| Compensation | Contributions to employee benefit plans & deferred compensation | Expense account and other allowances |
|---|
| $0 | $0 | $0 |
| $0 | $0 | $0 |
| $0 | $0 | $0 |
| $0 | $0 | $0 |
| $0 | $0 | $0 |
| Total number of other employees paid over $50,000 | 0 |
| Statements About Activities (for 2007) |
| Expenses paid or incurred in connection with the lobbying activities | $0 |
| Did the organization receive or hold an easement for conservation purposes, including easements to preserve open space, the environment, historic land areas or historic structures? | No |
| Did the organization provide credit counseling, debt management, credit repair, or debt negotiation services? | No |
| Did the organization maintain any donor advised funds? | No |
| Did the organization make any taxable distributions under section 4966? | No |
| Did the organization make a distribution to a donor, donor advisor, or related person? | No |
| The total number of donor advised funds owned at the end of the tax year | $0 |
| The aggregate value of assets held in all donor advised funds owned at the end of the tax year | $0 |
| The total number of separate funds or accounts owned at the end of the tax year (excluding donor advised funds included above) where donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts | $0 |
| The aggregate value of assets held in all funds or accounts included above at the end of the tax year | $0 |
| Reason for Non-Private Foundation Status |
| The organization is not a private foundation because it is | Organization that receives a substantial part of its support from a governmental unit or from the general public |
| Support Schedule |
| 2004 | 2005 | 2006 |
|---|
| Total | $4,357 | $15,573 | $24,958 |
| Gifts, grants, and contributions received | $0 | $8,550 | $14,312 |
| Membership fees received | $0 | $0 | $0 |
| Gross receipts from admissions, merchandise sold or services performed, or furnishing of facilities in any activity that is related to the organization's charitable, etc., purpose | $0 | $2,640 | $3,705 |
| Gross income from interest, dividends, amounts received from payments on securities loans (section 512(a)(5)), rents, royalties, and unrelated business taxable income (less section 511 taxes) from businesses acquired by the organization after June 30, 1975 | $0 | $26 | $113 |
| Net income from unrelated business activities not included above | $0 | $0 | $0 |
| Tax revenues levied for the organization's benefit and either paid to it or expended on its behalf | $0 | $0 | $0 |
| The value of services or facilities furnished to the organization by a governmental unit without charge. Do not include the value of services or facilities generally furnished to the public without charge | $0 | $0 | $0 |
| Other income | $4,357 | $4,357 | $6,828 |
| Lobbying Expenditures by Electing Public Charities (for 2007) |
| Total exempt purpose expenditures | $0 |
| Total lobbying expenditures | $0 |
| Total lobbying expenditures to influence public opinion (grassroots lobbying) | $0 |
| Total lobbying expenditures to influence a legislative body (direct lobbying) | $0 |
| Other exempt purpose expenditures | $0 |
| Lobbying nontaxable amount | $0 |
| Grassroots nontaxable amount | $0 |
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| Organizations performing similar types of work |
| Id | Name | Address | State | Established | Total Income |
|---|
| 1 | Parkinsons Disease Foundation Inc | 1359 Broadway Rm 1509, New York, NY 10018-7867 | NY | 1959-02 | $21,883,399 |
| 2 | Diabetes Research And Wellness Foundation Inc | 5151 Wisconsin Ave Nw Ste 400, Washington, DC 20016-4124 | DC | 1993-10 | $12,549,477 |
| 3 | Cray Medical Research Foundation | 20045 266th Rd, Atchison, KS 66002-6147 | KS | 1983-06 | $780,733 |
| 4 | Cicatricial Alopecia Research Foundation | 303 W State St, Geneva, IL 60134-2156 | IL | 2005-07 | $115,203 |
| 5 | Ralls Family Foundation | 23525 Mirage Ln, Diamond Bar, CA 91765-3364 | CA | 2000-01 | $40,704 |
| 6 | Aleskan Foundation | 202 Wickford Rd, Havertown, PA 19083-4741 | PA | 2001-02 | $276 |
| 7 | Lifestyle Initiative For Education | 616 S El Camino Real Ste M, San Clemente, CA 92672-4299 | CA | 2004-05 | $0 |
| 8 | Sequella Foundation Inc | 9610 Medical Center Drive Suite 200, Rockville, MD 20850 | MD | 2007-06 | $0 |
| Number of organizations performing similar types of work |
| California | 2 |
| District of Columbia | 1 |
| Illinois | 1 |
| Kansas | 1 |
| | Maryland | 1 |
| New York | 1 |
| Pennsylvania | 1 |
|
| Total | 8 |
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